Aims and objectives of the workshop:
• Consider why and how PROs could be embedded in routine care to improve care and research
• Highlight key areas of research in this field
• Identify opportunities and challenges to implementation
• Identify opportunities to collaborate to drive progress in this area
• Develop a research agenda
TMRP-HDRUK North Workshop Agenda
Recordings from the workshop are available to view below.
1) Overview of the area and case study – Kate Absolom (University of Leeds)
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2) ‘Core outcome sets for routine care and research’ – Anna Kearney (University of Liverpool)
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3) ‘PROs collected alongside routine data in clinical trials’ – Alice-Maria Toader (University of Liverpool)
4) ‘What do we know about patient engagement with PROs – a scoping review’ – Rhiannon Macefield (University of Bristol), Lee Aiyegbusi (University of Birmingham)
5) Data Standards - Geoff Hall (University of Leeds)
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6) ‘Supplementing registry data with PROM data collected through apps’ – Fred Taylor (UK IBD Registry)
7) Panel Feedback
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